First, let me say, HAPPY NEW YEAR TO EVERYONE! And to those hippies-in-waiting - let me tell you, IT'S WORTH IT!
Well, I am a 51 year old female and am now 15 weeks post/op my left THR. As most of you will remember, I think I hit the all-time low as being the most terrified, depressed pain-ridden crippled up person I had the misfortune of knowing - and I whined and whinged and cried as I researched and posted my way thru 3 1/2 months of waiting for my operation. I had no idea that joint deterioration could cause such excrutiating muscle pain and I now know that I will NEVER EVER EVER joke again about "oh, its just a bit of arthritis kicking up!!!"
I was utterly terrified going into the operation and was firmly convinced that I wasn't going to survive it! Then, the next 7 days in hospital were the longest, loneliest, stressful, most frightening and depressing pain-filled days and nights I have ever experienced. My husband and I are very close and being separated from him for all that time, most of the day (except for a bit of visiting time) and all night for that week was the worst for me, especially when I needed his closeness and love and support the most. I just wanted to be held, especially at night! Neither of us were are at all happy with that situation. I don't understand why people have to be separated from their best support when they really need it most. Doesn't make sense!
And it didn't help that I was in a room with a chronic patient whose problems and odours seriously affected my ability to concentrate on my own healing. I had 3 different crying jags from improperly controlled surgical pain and this time period made me really wonder why I had gone thru with this operation and what had I done to myself??!! I must admit, for all that I had educated myself technically on what to expect, I had no idea of the emotional backlash this operation was going to cause me. Nothing prepared me for any of that. Nor did I expect to feel very alienated from my new hip - I felt I had become a cyborg or some such thing and worried constantly about infection or dislocation and fretted about restrictions.
The first 6 weeks of surgical pain, staples, walkers, restrictions, partial weight-bearing, aching hands and arms and neck from walker, being confined to home and bed in the living room, sleeping only on my back and with a pillow between my legs, and dealing with Home Nurses, Physios and Blood Testers and the anti-blood clotting Coumadin and needles for blood-tests drove me batty with frustration and more pain! THIS THR STUFF AIN'T NO CAKEWALK! BUT... all this stuff isn't forever and six weeks only SEEMS like forever at the time... believe it or not, you DO get better!
I am lucky, however, in that I generally heal quickly from any tissue damage. So, at my 6 week mark, I was ok'd to go to cane as much as I felt I could and start some PT. I could now even drive!!! HAPPY DAYS! FREEDOM!!! It was nice to get off the painkillers for awhile. AND I was started to see a light at the end of the tunnel - as I started getting around on my own, I realized, the only pain now is that of abused muscles while they heal - NOT arthritis pain! Hmmm... maybe this operation was not such a bad idea, after all!
The next few weeks have passed basically without incident - I keep up the PT, go to pool exercise therapy (oh, but that warm pool is SOOOO nice!) and do some cycling on my stationary recumbant bike. I can now sleep on my back, stomach, and right side (often without pillow now, but sometimes with, just for support if op leg is tired). However, I find if I try to sleep on op side, the bed seems to be too hard and I feel like the bones or the implant are digging very painfully into the operated muscles and I very quickly roll off the hip sort of half onto side, half onto stomach. So, slowly, the left leg is strengthening but the incision (9.5 inches long and running sort of diagonally vertical down my leg) still feels a degree or two warmer than the surrounding flesh and occasionally the incision actually stings! (MY GP said that this is due to the electrical impulses of the synapses of the severed nerves trying to grow back together and sort of "shorting out" till they actually connect! Weird explanation but - seems to fit!)
Well, now I'm finally beginning to get over my heebie-jeebies about this strange thing in my body. When I looked at my first xrays with this thing there in place of my bone, it shocked the heck out of me - and REALLY bothered me emotionally for several weeks. With my second xrays, I actually took a digital photo of my xrays, and downloaded it onto my PDA and every so often I look at it - sort of to get used to it. Morbid, eh? but the method seems to be working. It does help that my OS has been ecstatic with my improvement at each of my checkups and is thrilled at the way the implant has settled in with no apparent problems.
I still get some front thigh and quads pain and it aches a lot when I get tired - but now that I'm going to back to work in my job as a real estate agent, I think it will get more and more natural exercise and hopefully will steadily improve. AND I can walk on that leg with NO arthritic pain!
The fly in the ointment? My right leg took such a beating from having to be the sole support for so long, that it, too, has deteriorated rapidly enough that I'm back on the Celebrex and painkillers. This has depressed me enough that, in conjunction with the previous pain and depression problems, I am now having to take anti-depressants just to get by. Does NOT thrill me, but, then again, neither do crying jags and pain and suicidal depression appeal to me, either! DANG, but I wanted a few pain-free months to enjoy my new hip before I had to worry about the other one, and that ain't happening. I feel really ripped off about that!
Good thing? Now that I see that the THR works, and my surgeon did such a good stable job on me, that I've already asked her to review my case for doing the right hip. However, she is adamant that she won't even consider the right one until my 6 month post-op check up (early March/04) convinces her that the left THR is strong enough to take the strain for the right leg without loosening! Sensible precaution - she knows I won't sit still for long! But I'm now suffering excrutiating pain again, in the groin and right hip joint and am back to waddling and lurching and having all the usual difficulties getting up and down from chairs, cars, toilets, beds, etc. The pain has me depressed and crying again, many times, and is continuing to interfere in ability to do my job. And now I'm really suffering financially as well as physically, mentally and emotionally.
So, I fully relate to and understand all of you WHO WANT YOUR LIFE BACK! and not be a cripple anymore! The only thing I can say is, as long as you wait, you will continue to be a cripple and suffer mentally, physically and emotionally, and probably financially as well. The hardest decision of your life will be to say to your doc "Go for it" and NOT chicken out at the last minute. The day they call you with a firm operation date, you'll feel like you've been gut-kicked and *utted at the same time. But if you DO "Go for it" you've got a chance at the brass ring - a real good chance given how common this operation is now. As far a major surgery goes, this operation has been performed so many times and is so well documented, and researched and fine-tuned, that all the professional players involved are very familiar with it and there are very few surprises for either you or your medical supporters.
This operation is different for everyone - while some of my in-hospital experiences still give me nightmares, this is not true for everyone, in fact, not for most people. Also, many post-op sitations are much less frustrating and more fullfilling and lots of people are up and about a lot sooner that me.
There is one good thing about this disease - its not fatal and its not contagious - and, while not yet totally curable, as least there is a solution for the problems.
I hope this helps others - it helps me just to write it down somewhere.
Posted by patriciacooper
at 12:50 AM EST
Updated: Wednesday, 31 December 2003 11:09 AM EST